It happened again. Another seizure that required meds. But this one had a twist: Sarah wanted to be put to bed in the middle of it by Brian – and Brian was holding Catherine. “Daddy put you to bed,” she whimpered at the door. That’s how she tells us who she wants to put her [...]
Posts Tagged ‘special needs’
Special Needs of the “Normal” Sibling
Posted in Uncategorized, tagged daughters, kids, Life, seizures, special needs on November 30, 2010 | 1 Comment »
Let the Data Show
Posted in Uncategorized, tagged cerebral palsy, doctors, Epilepsy, kids, Mom, seizures, special needs on November 24, 2010 | 4 Comments »
We’re entering another phase where instead of being a mom, I become a scientist. Instead of snuggling and hugging and cheering, we will observe and track and analyze. I don’t especially like these phases, but long ago I learned that we all do things we don’t like, right? Catherine has been having “episodes” every night, [...]
Magical Experiences for Disabled Kids
Posted in Uncategorized, tagged cerebral palsy, disabled kids, hope, magic, special education, special needs on May 7, 2010 | 5 Comments »
Wow! Some days you’re just thankful you got up and had the stuff on your calendar that was there. Catherine didn’t have an aid on Tuesday, so I got to play that part at school. I actually love the excuse to spend a whole day with her, just the two of us. As soon as [...]
Festivals and Stares
Posted in Uncategorized, tagged hope, special needs on October 8, 2009 | 3 Comments »
We recently went to an art and music festival in Annapolis. I have a hunch Catherine responds differently to live music, so I wanted to expose her to whatever the “music” part of the festival had to offer. Turns out, it was a quartet playing at noon under a tent on a perfectly crisp fall [...]
If Everybody Had a Notion
Posted in Uncategorized, tagged disabled kids, hope, kids, special needs, surf on September 4, 2009 | 4 Comments »
Catherine got to surf! Yep. I haven’t even ever tried surfing. I wimped out in Tamarindo, Costa Rica for some stupid reason, but my five-and-a-half year old (cuz that’s how she’d say it) got to surf when we were on vacation a couple of weeks ago in Wrightsville Beach, NC. We had sent the guys [...]
Smiles
Posted in Uncategorized, tagged disabled kids, hope, kids, special needs on August 3, 2009 | 1 Comment »
My mom sent me an article about a girl in Charlotte who has a rare implication from jaundice. She was getting ready to have a surgery that would create deep brain stimulation to hopefully help control her chaotic movements and help her learn to talk. Prior to surgery, she was a lot like Catherine – [...]
Allergies waiting
Posted in Uncategorized, tagged Allergy, disabled kids, kids, seizures, special needs on July 25, 2009 | 1 Comment »
Once again, we’ll wait and see… Catherine had a severe respiratory attack on July 5 after going out for a bit of ice-cream to close the holiday weekend. We wound up riding via ambulance to the ER. Happy Independence, huh? Suspecting the ice-cream we let her taste, we asked her pediatrician to run an allergy [...]
School
Posted in Uncategorized, tagged disabled kids, special needs on July 20, 2009 | 1 Comment »
Catherine has been attending UCP’s Delrey school this summer. So far, she’s doing great, and we’re really happy with it, especially in comparison with the county school for special needs kids. They’ve been able to feed Catherine and to help her use switches to communicate, and she’s doing great! She had a “jam session” with [...]
Arms Reaching Out
Posted in Uncategorized, tagged daughters, disabled kids, special needs on July 18, 2009 | Leave a Comment »
Sarah has just starting reaching out for me. Of course, she’s reached up and for me for a long time. But I mean really reaching out – like in the sense of, “I care about you.” Or in the sense of, “I really want to get close to you.” It’s not quite a hug. And [...]
Cultural Training
Posted in Uncategorized, tagged Culture, Epilepsy, special needs on July 14, 2009 | Leave a Comment »
I’ve been reading a free copy of Exceptional Parent, a magazine for the parents of special needs kids. It’s quite impressive. The articles are well researched and documented, and they provide deep looks into the lives of living with a kid with disabilities. An article in the June, 2009 issue titled, “The Basics of How [...]
